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GBS StoriesClick here for a map of GBS families around the world. Please add your story to the map! If you would like to share your GBS story with the Jesse Cause, please use our story-sharing page. You are also welcome to share your GBS story on Group B Strep International’s story-sharing page (Please note that you can copy and paste the main body of your story from one story form to another before they are submitted.). Premature Rupture of Membranes
Trish's doctors believe that GBS caused her membranes to rupture in her 27th week of pregnancy. Franklin lived only seven short hours due to being exposed to a secondary infection...
Our gift from God. Today, she is the most beautiful, loving, intelligent five year old. And most of all she is a miracle for us. I look back at those days and know that I would have never made it had I not turned my fears over to the Lord...
His lungs failed, then his heart and then his kidneys. It was three days before the doctors told us they thought he would survive...
On Dec 19, 1997, I gave birth to twin girls at 27 weeks of pregnancy. The doctors said that since my membranes had a leak and it looked as if I had Strep B that I would have to deliver.
My membranes had ruptured, but I was not in labor. The hospital waited until the next morning to call my OBGYN, and then started my labor...
...I knew something was wrong. I told the nurse that the baby would not stop grunting. She told me that "babies make noises" and I would have to get used to that.
My 'water' broke, but I wasn't in labor. More than 24 hours later, labor was induced. Devin developed Strep B meningitis...
Not long after having the drip set up my baby was so distressed that they rushed me to theatre to have an emergency c-section.
I started noticing an unusual discharge on week 16th and went to the doctor. They did a sonogram, blood test, etc. and EVERYTHING was negative. They sent me home. Again, the discharge kept getting worse and again I went to the doctor and the SAME THING. Less than 48 hours after seeing the doctor for the last time, I was having a miscarriage.
Had to go to the ward without my daughter, but thought it was procedure. When I demanded to know about my daughter, nobody had the right answer for me...until the next day.
It turned out she had GBS in her blood. I had tested negative for it 2 weeks earlier...
...but he was born too early...
I hope my story can also bring hope for other people as I thought there was nothing that could help. xxxx
I was on complete bed rest in the hospital when I went into labor at 32 weeks, but they said I was showing flu symptoms and the baby was in distress...
My water broke at 36 weeks. I went in to see my OB, but they sent me home...
After 15 hours of labor, the doctors told me I was running a fever. After a difficult three hours of pushing, my daughter was born. She had a high fever and was rushed away to the nursery...
I went to the OB doctor at 16 weeks with bleeding, fever and cramping...
My membranes ruptured on March 25th, but it was not a gush, just leaking...
She was very ill and I was given no hope for her survival...Today she is a beautiful 27 year old woman getting married in June...
His breathing became so labored that it looked like his chest was about to cave in...If they had done GBS testing at the onset of my water breaking we could have avoided so much of this experience.
After 16 years I have just been told that strep B was the cause. Worldwide awareness is what is needed...
...but he kept making a funny noise. I told the nurses something was wrong. So did my mother. They told me it was normal...
I got sent to the hospital for rupture of membranes. Over the course of 8 hours, my baby wasn't moving and his heart rate kept on dropping...
Preterm Labor
I was only 34.6 weeks along, but I had been having preterm labor for 5 weeks. At 7:30 PM Bennett Neil was born. The nurse handed me my beautiful baby boy, but after about 30 seconds, he was taken from me and given oxygen...
My mommy had an infection that they call Group B Strep which caused her to go into premature labor...
Basically, my baby was coming that day at 26 weeks...
That is when I was told that overnight they got the blood work back and in 8 short hours he had to undergo a spinal tap to be certain that the infection hadn't spread into his brain. I guess ignorance is bliss as I still didn't know what Group B strep was or how dangerous it could be...
I tested positive for GBS this time also, except this time they tested twice and the second test was negative, so I was not treated with antibiotics.
Since her GBS test was positive, she had been on oral antibiotics for a week and her 1 lb, 12 oz. daughter...
After two years of trying to conceive, we were blessed with our sweet Benjamin. Unfortunately, GBS claimed him at just 22 weeks gestation..
I had her at 25 weeks. She lived 31days. Before this I had suffered from water infections and high fever and vaginal bleeding...
Today I found out my only son who was 28 weeks premature has the infection...
Meanwhile they checked my GBS status by vaginal-rectal swab (test result required nearly 48hrs) and at that moment I tested positive, though no IV antibiotics were offered instead of IM antibiotics,,,
Stillbirth
She died of a Group B Strep infection about half an hour before she was born...
I heard the words, "Sweetie, your baby died in the ambulance on the way to the hospital"...
I was 41 weeks pregnant when the doctor decided to do an internal exam and then proceeded to strip my membranes without my permission...
Autopsy results concluded that Kirsten died of a Group B Strep infection 2-3 days prior to my giving birth...
My heart aches every day for the daughter that I have lost while my OB's still tell me that they don't know how GBS could have crossed my placenta even though medical literature clearly states that it can...
I showed signs of strep b with a high temperature, but that didn't concern the midwife....
...we were finally given the diagnosis that I had an infection called chorioamnionitis. This week while talking to my MD, he told me that this infection is almost always caused by Group B strep.
I will never forget the day I gave birth to my daughter--August 18, 2006. The day before I started to have chills.
My son C.J. was stillborn on his due date, November 4, 2006. I believe it was due to a false negative GBS test (the doctor wasn't sure how to do it and kept referring to the nurse).
The post mortem revealed that twin one, Georgia, died of pneumonia caused by GBS and twin two died as a result of twin one dying and restricting the placenta.
My baby was moving more than normal, but I wasn't worried because that's what babies do, and besides my doctor's appointment was the next day.
I complained of kidney area pain for about a month to my Dr. He said it was sciatica. I finally insisted on a test for a bladder infection. It was ragingly positive...
My wife said that she felt the baby was distressed, but was assured by the doctor that all was okay and that we should go home...
A month before, I had rushed to the ER complaining of clear fluid for days. The nurse ran a swab test and told me I was fine. She said that I had an infection. No doctor saw me or test was ever done...
I was induced at 38 weeks and 2 days, and it failed. The next day I gave birth to a stillborn...
Early-Onset
Abby was born at 6:13 pm and for the first couple of hours, all seemed well. After 1/2 hour or so it became apparent to the nurses in the nursery that Abby was in some respiratory distress...
An hour later she stopped that funny noise, good....but I felt something was wrong...
Emmie was placed on a respirator at 11 minutes of age. The doctors and nurses tried their best to explain to us all that was going on with Emmie. The pneumonia, the sepsis, the low blood pressure and of course the respiratory failure...
My son was born with Strep B and almost died— they only gave him a 10% chance to live. My Doctor never tested me or even gave me an option to do so...
My wife asked 3 different times to be hooked up to the IV and receive the medication for the strep B. The doctor came in and broke my wife's water at 10:30 pm, and we were still not hooked up with the IV.
GBS-meningitis, pneumonia and liver problems. The infection destroyed all of her brain with the exception of her brain stem, which only keeps her alive...
In our lives for such a short time, but you will be with us forever.....We love you and miss you!!!
Noah was born that afternoon, he was perfect! But never did we imagine that we would not bring him home...
About 2 1/2 weeks before Katy was due, I started feeling crummy...
Over the next few hours and into the night I noticed baby was breathing strangely and could not suck at all...
I was born in with Beta Strep but I just now found out how serious of a problem it is....
...the doctors found out that our child was infected with GBS bacterial meningitis. My GBS test at 36 weeks was not properly done as the right areas were not swabbed!
I gave birth to a cute little 5lb, 3oz baby boy named Larry, and everything was going ok. When I noticed that his breathing was not right, I told the nurse and she told me that he was a newborn and that it was normal for babies to breathe like that
I had a doctor tell me that my son had a 30 percent chance of survival--not good at all...
He was beautiful and seemed to be healthy, but then the next day, when we were released, he started having seizures.
Nicole also had a fairly normal delivery, was tested for GBS, and, as many others, was told in no uncertain terms, "nothing to worry about, no big deal."
I was told that I was negative for Group B. A week later I woke up and felt that I was leaking fluid.
On November 9, 2004, Liam Terrance was born. He was the most beautiful baby boy in the world. He was grunting a little, but the doctor told us he might have a bit of a headache caused by the delivery.
My son was born about five hours later and was very ill with pneumonia from the GBS...At about 2 years old we began to notice he had visions problems.
Our unexpected nightmare started the minute our beautiful Clair was born... I knew that I was GBS positive, but was reassured that it was no big deal....
I have never been so terrified in my life. When they told me what he had and the fatality rate, I couldn't believe I didn't know more about this...
“Group B Strep is a vicious organism.” Those words will forever echo in my head. I was sitting at the bedside of my newborn baby boy, Paul Philip, as he struggled for life.
My daughter was born on the 11th of November 1999 and was rushed straightaway to the newborn intensive care unit at our local hospital.
...I would be given antibiotics before delivering my son in 1994. I felt reassured that the baby would be fine. HOWEVER, during my delivery, my i.v. infiltrated...
We believe that he was exposed to GBS because my water was broken so early and he was exposed to my birth canal while we waited for him to drop.
We would have never guessed as he looked so perfect...
I had two Urinary Tract Infections while I was pregnant with Lauren. My OB/GYN told me there was nothing to worry about that they will just treat me as positive for Group B Strep.
I told the doctors about all the signs he had and they all ignored me like I didn't know what I was talking about...
At my 36 week check up the results were in....negative!
...on the 6th day I noticed he didn't awake for his feeding and he was making a grunting noise.
On the 23rd of May the doc at the hospital gave us the all clear even though Brodie didn't pass the hearing test. The nurse that was to come to the house on Wednesday the 24th would do it. That never ever happened.
Apparently I was supposed to have received the antibiotics 4 hours before delivery...
I got to the hospital and they asked if I had my GBS culture results because they couldn't find it in my file. I was very unsure and told them to call my doctor. It was 3 o'clock in the morning so the information at the doctor's office was unavailable. I was negative with my first pregnancy so I was not treated with antibiotics even though they couldn't confirm my results...
I was 8cm dilated and just barely made it to the hospital. Needless to say I did not receive any antibiotics. When we asked her about the Strep B, she told us not to worry about it.
He was born almost 10 lbs, and it was hard to believe by looking at him that there was anything wrong...
My son is now 25 years old and he was born with GBS meningitis....he went undiagnosed for more than 12 hours...
My baby died 30 hours after his birth due to overwhelming sepsis caused by GBS...
My parents were told my chances were and I quote, .... " We are seven down in the first." To most baseball fans that means I had no chance for survival.
The next morning three hours passed and he didn't nurse. That was unusual for him. Then four, then five hours passed... I knew something was wrong. I could feel it.
My son Hayden was born at 36 weeks taken early for my health reasons. Immediately after birth he had trouble breathing...
My water had broken 2 weeks before I went into labor, but it was a small tear and it didn't show up on the nitro strips so they didn't believe me that I was leaking...
I had the test and mine came back negative, but then I had a baby who was positive.
She never let out a real cry, but made grunty noises...
When I was pregnant with my first son, Cooper, I tested negative for GBS. Unfortunately for our family it was a false negative...
SHE HAD TWO GBS TESTS AND BOTH WERE NEGATIVE...
New moms, there's a difference between being tired and being lethargic because of GBS. Aidan was like a ragdoll when he was sick.
My son did not breath for 10 minutes when he was born.
...they told me her temp was down so they were going to keep her in the nursery. At 5 am they woke me to tell me they were transporting her to Baptist Medical Center..
They then told my husband that our son had GBS. I started asking nurses and researching only to find out the test was not done properly!
...he awoke crying softly. I attempted to feed him, but he would not eat so I rocked him back to sleep. An hour later he awoke again. I was sure that he was hungry then, but again he would not eat....he just grunted and cried a little...
He was swooped out of the room before I could hold him because he was grey & grunting. A few hours later the doctor came in & told us Zack had Beta Strep and it didn't look like he would survive.
Our granddaughter, Achinoam Chaya, was born at 18:30 on Saturday evening, a seemingly healthy beautiful baby girl. A mere 12 hours later she was in the NICU, on a respirator and in critical condition...
She came out, did not cry but was grunting..
...my test result for GBS was negative and my baby come out sick enough to pass away 2 days later...
Two hours after she was born I called the nurse and told her my other two children did not cry and breathe like this...
We had gotten home and she began crying nonstop and drawing her legs up to her chest. She also felt like she was 300 degrees so I rushed her to the hospital...
Kensie was born full term and healthy. When she was 6 days old both Kensie and Erika (her mom) were rushed to 2 separate hospitals. Erika was GBS septic and Kensie had GBS meningitis...
At 7 p.m. he started to make scary grunting noises and had difficulty breathing....
Everyone was unaware that my wife had it because she had tested negative for it a few weeks prior...
On December 4th I was leaving work and felt a gush of fluid. I went to the ER and they said it wasn't my bag of waters. So the following Saturday I felt the same gush and then it broke completely...
Later that night around 7pm she began grunting and having trouble breathing...
My baby got infected with GBS, and died after three and a half weeks of life. This happened in 1983 and YES, it haunts me daily...
I was in labour for 36 hours then had a c-section...
I contracted strep B when passing through the birth canal. I spent four weeks in the NICU on the verge of death. My mother was told by nurses and doctors that, while I would live a healthy life, mentally I would never be on par with my peers. I have since gone on to be valedictorian of my high school class, graduate summa cum laude from an Ivy League university, and am currently pursuing a degree as a medical doctor in oncology. There's hope!
About 10 days before my due date I asked my doctor to strip my membranes…
Two weeks later my son was crying with a high pitch, was very uncomfortable, and kept crying for about 2 hours straight...
My story results with both my newborn and myself getting strep B septicemia…
...I was not tested for it prior yet i did ask too! My doc at the time felt that it wasn't needed...
What’s most important to me is that everyone knows her like I do; To know that she is real, she was here in my arms. If her death goes unnoticed and other women don’t have the chance to read our story and learn from our heartbreak, then there is no justice.
I just wish we were more educated at the time. We did not know the severity of group b strep or what it really was. I just want every pregnant mom to be aware of what group b strep is and how harmful it can be to a baby...
Late-Onset
Brian Joseph fell victim to late onset GBS on August 29, 1998, 25 days after his birth. He suffered a seizure right in front of my husband and me....
On Thursday, Dr. C explained to my large loving family and friends about my fatal illness. He explained Moma and Daddy's decision to take me off this terrible respirator, and get these needles out of my body...
When she woke she wouldn't eat, and started grunting...
My test results came back positive and my doctor said it was no big deal...
Our son Charlie was born on May 21, 2003 and was healthy even though he was 4 weeks early. On Tuesday, June 10, he became very fussy and inconsolably crying....
I was told that I had Group B strep, but I had nothing to worry about because I was having a C-section...
On May 1st he started having problems with his heart rate...
My mom noticed she wasn't nursing well and was fussy so she got her in to the pediatrician.
On Saturday, October 28th, I felt that Mackenzie was not acting right. She was in a state of semi-consciousness all day, and she seemed fussy. She was not really crying, more like moaning. She would not eat, and this really concerned me...
I was 31 weeks along with identical twin girls and awoke one morning to my membranes rupturing...
My son Javier a.k.a. "JJ" had symptoms, but I wasn't really sure what he had. However, I knew deep in my heart that something was wrong with him...
Kaelin came home on August 3 and by August 16 she was fighting for her life....
My child had Strep B at 5 weeks in 1993.
The next day they tell us she has meningitis. Though they don't know what caused it, they do know its bacterial; and an infectious disease doctor says she has never seen so much bacteria in any spinal tap.
When I asked the home nurse and the dr at the first week check up I was told that she is a newborn, "they sleep". I had a gut feeling that something wasn't right.
At a little over 3 weeks we thought she had colic as she wouldn't eat much, didn't sleep much, and cried a lot. When she was 4 weeks old, her daddy was holding her and her eyes crossed almost inside her head...
I noticed she wasn't eating and kept sleeping alot and when I would go to pick her up to make sure she was ok she would let out a horrific scream...
Crying was something Erin did not do alot so to us it was odd. She cried for about 1/2 hour; then went back to sleep. She then awoke again but was making kind of a groaning sound...
When my daughter developed GBS bacterial meningitis at the age of 7 months, they told me she probably wouldn't make it...
We lost Xavier Sawyer Miano (Sawyer), "Mommy's Pigletpoo" and "Daddy's Pardner", to late-onset group B streptococcal meningitis, general sepsis, and hydrocephaly on October 11, 2005. Our son was the answer to years of prayer...
Hudson passed away at 6 weeks old due to late onset GBS...It all just happened so fast.
I lost my five month old daughter Emily on September 3, 2005 to the ravaging effects of Group B Strep. The pain of losing a child seems unbearable at times...
My daughter Bentley was diagnosed with Group B Strep Meningitis at 10 ½ weeks even though I tested negative during my pregnancy and had a C-section...
My son was born a healthy 9 lbs. baby, one week late. At 18 days old he became very sick...
...after receiving the autopsy results we were informed that he had died from an overwhelming GBS infection. Obviously we were stunned as I was tested prior to delivery and was negative.
I had never heard of this infection until this happend to me.
My son Jake was born on July 19, 1995 by a C-section and had late-onset GBS TWICE, once at 3 weeks and again at 9 weeks. I tested NEGATIVE for GBS and he was delivered by c section
At about 12:30 I told my husband, "Something is wrong with this baby," and when he asked, "Why do you think that?" I told him that she wouldn't latch on!!
I noticed she wasn't breathing right (grunting), and not feeding right. Still I took my baby home but still couldn't get this feeling that something wasn't right out of my head--a mothers instinct.
...he awoke screaming and crying as though he was in pain...
Owen didn't show any symptoms of GBS until his 4th week in the NICU. Immediately upon coming to see him that day, I noticed he looked strange...
I knew nothing of GBS at the time - was given antibiotics, but of course that doesn't prevent late-onset.
My son Moises passed away at 19 months of age of group B Streptococcus...
I woke one morning and thought it was odd that he hadn't woken up yet so I checked on him and he was not breathing....
My son came out fine, but 2 weeks later he became very ill...
On 11-28-08 I gave birth to a beautiful HEALTHY baby boy who I called Julian. Twenty days later he showed signs and was diagnosed with GBS meningitis. The hardest thing I've ever had to do by far was watch my 10 day old baby fight for his life...
My daughter Brittni was diagnosed with having GBS at 3 months of age...Now she is almost 16 years old and has some speech problems and is not on schedule for her age as far as school goes, but she is our miracle baby.
Little did we know he had GBS and his little body was a time bomb...
My son, Jacob Connor Playforth, was born April 15th, and passed away May 16th from late-onset GBS.
Then at 4 weeks Kallie was fussy and was whimpering. I thought she had a tummy ache the whole day...
My daughter Lillian was diagnosed with Strep B which resulted in necrotizing fasciitis. She was four weeks old...
AJ had a bit of the sniffles. Three nights later in the middle of the night AJ didn't wake up for his 1:00 AM feeding...
WE ARE EXTREMELY LUCKY AND BLESSED!!!!
He was perfectly fine until one day he woke up with weird symptoms...
When he was 9 weeks old it was a very hot summer day. My mother was holding him and said that he felt hot...
This is when I made my first mistake--instead of taking her to the ER, I decided to wait it out until her pediatrician's office opened...
He didn't nurse well and was a little fussy. I was trying to rock him back to sleep when he threw up the first time...
At 3 am Finn woke up screaming with a cry that had an intensity that we had not experienced before...
My son, Brantley, was 3 weeks old when suddenly he stopped moving his right elbow and screamed at the slightest touch...
I am writing because on 13AUG2015 our son Lochlan Michael Driscoll was laid down for his nap by the daycare provider and he never woke up. 3 months after that date we learned that our son Lochlan died of Strep B pneumonia.
Other
Kyle's story is one even a new pediatrician in our group did not believe...
After days of crying and worrying, I decided that when the baby comes, to cherish every cry, every sleepless night and any other hardship that came my way as it could be just a matter of time....
I was never tested for Group B Strep during my 35th-37th week of pregnancy. Possibly a combination of Group B Strep (Sepsis) and jaundice turned into hyperbilirubinemia (kernikterus) to cause my son's disabilities.
After my baby was born I was told that she had a fever, but that everything seemed to be okay...
I said that the baby wasn't moving much...
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 Copyright 1999-2004 Jesse Cause Foundation |
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