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Early-onset story   — anonymous

I was visiting this site when I realized a lot of similarities. I have a son that is now 2 years and 7 months. He was placed on ECMO for 10 days for 3 of the main underlying conditions. He was born with group b strep pneumonia, pulminary hypertension, and premature lungs. I had a doctor tell me that my son had a 30 percent chance of survival--not good at all.

I never understood why, when the test was performed and I was given a positive reading for strep, that the doctor didn't seemed concerned even though I told her repeatedly that my fluid was leaking. She said that since I have had 4 pregnancies it was common and all they would do is hang antibiotics.

It didn't work-- it was too late and the damage was already done. My son deals now with pneumonia and extremely hard winters. I think that more research needs to be done to prevent the problems that may arise instead of waiting until the last minute when we have children that have to suffer for the rest of their lives. I don't regret all that I have been through, but I do regret all that he has been through.







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